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Scoliosis Communities & Social Media—Finding Real Support, Avoiding Misinformation

Scoliosis Communities & Social Media—Finding Real Support, Avoiding Misinformation

Online communities can be powerful sources of connection for people with scoliosis—but also a source of fear and misinformation. Knowing how to navigate them safely is essential.

Benefits of Online Communities

Supportive groups can offer:

  • Shared experiences and practical tips.
  • Emotional validation from people who “get it.”
  • Inspiration from success stories.

Risks of Unfiltered Advice

Pitfalls may include:

  • Unproven or unsafe treatment claims.
  • Negative stories that don’t reflect typical outcomes.
  • Advice that contradicts your medical team’s plan.

Dorsi’s Guidance

Dorsi Spinal Institute helps patients:

  • Identify reputable groups and forums.
  • Interpret what they read in light of their own case.
  • Bring online questions back to clinic for clarification.

Next Steps

If you or your child feels overwhelmed by scoliosis content online, Dorsi can help you build a digital support strategy that boosts confidence instead of anxiety.

Related reading: see our blogs on mental health, support networks, and top scoliosis questions.

 

Written by

Dr Matthew ABJ Potts BSc MSc DC ISPRM
Clinical Director 
Doctor of Chiropractic 
Specialist Scoliosis Consultant 
Fellow of the British Scoliosis Society 
Member of the Scoliosis Association (UK)
Chair of the Clinical Advisory Board at Meloq AB
Member of the International Society of Physical and Rehabilitation Medicine
Editorial board member of international journals CICRJ & Rehabilitation Science
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